To: Sean Dunbar
Public Consulting Group, Inc
148 State Street, 10th Floor
Boston, MA 02109
sdunbar@pcgus.com
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What
philosophy would I like the system re-design to reflect?
Philosophy on paper and philosophy in practice are two
entirely different critters. We are now hearing DHHR parrot terms
like "person-centered," yet there is nothing about the MR/DD waiver
renewal or draft regulations that is person-centered. In fact, by
adding an ASO to the mix, DHHR is effectively hobbling the
interdisciplinary team process. That is NOT person-centered.
"Person-centered" has, unfortunately, become yet another buzz word (like
"choice") that is not worth the paper on which it's printed. MRU WV
would like the system re-designers to abandon the core hypocrisy and truly
embrace the philosophies they claim to support. Until this is
demonstrated in policy and practice, the words themselves are meaningless.
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What
are my expectations for the re-design?
Expectations? MRU WV expects that DHHR will continue its
attempts to weasel out of as many services as it possibly can while
wrapping the re-design with a big, red ribbon and presenting it as "the
new & improved person-centered waiver program." MRU WV expects DHHR
to continue to express its surprise when stakeholders do not fall all over
themselves expressing their gratitude for such benevolence.
Ideally, MRU WV expects the bureaucracy to actually LISTEN to
stakeholders, rather than simply go through the motions of soliciting
public input. MRU WV expects true DIALOGUE with policymakers, rather
than condescending and disingenuous proclamations. Are we bitter?
You bet your boxers we're bitter -- and with damned good reason.
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What
key components of the current waiver are working well?
That varies so much from provider to provider that it's difficult to
pinpoint with any accuracy. The program, without true
accountability, is a crap shoot for consumers. "Choice" is NOT
working because, in reality, it only exists on paper. Program plans
are NOT implemented because there are no penalties for failure to do so.
If a consumer has good services, it is almost always the result of
dedicated and responsible direct care staff, service coordinators, and/or
QMRPs. The system neither rewards those individuals nor penalizes
those who do the least work possible.
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What
are the major gaps in the current system?
Accountability for the implementation of individual program plans (IPPs).
As long as DHHR is allowed to throw up its hands and claim it has no
authority to compel providers to actually deliver services, the consumers
are just shit out o' luck. End of story. No one -- not CMS,
not DHHR, not providers -- is being held accountable TO THE CONSUMERS.
True choice of service providers. (Per DHHR, an agency is only
supposed to be allowed to turn a client away for capacity reasons -- and,
if that occurs, the agency is supposed to develop a plan to increase
capacity. We all know that's NOT how things work.)
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What
would make the re-design successful?
MRU WV does not believe the re-design CAN be successful. There are
serious flaws in the system's foundation, and DHHR continues to throw good
money after bad with its insistence on shoving APS HealthCare down
stakeholder throats.
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The West Virginia Medicaid Recipients' Union
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with any outside person or organization without express consent.
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